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Crayons, Playdoh & Wax » The DD

Crayons, Playdoh & Wax

Leslie’s Life being colored, shaped and molded

 

It’s Been Forever

But I have been so good about updating Twitter and being on Facebook. With all the stuff going on though, I think I need a place to be able to write and have it be more than 140 characters ;)

Just some of the stuff I am pondering and thinking about… K started middle school. Still not sure why I am having such a hard time with that one. Granted, she is not a little girl any more.

We changed churches. I loved the church we were at. I didn’t want to change, but I was tired of going alone. So, we are back at a UMC. The good thing is that K is getting to go to MYF. I have such fabulous memories of youth group. That part I’m glad. She feels like she fits in better. I however am having a hard time with how small the church is. Not that small is the issue, just not as many options. There is 1 women’s class…. on Tuesday AM. I work Monday and Tuesday nights. I would be falling asleep during class and then sleeping from the time I got home til I went to work that night. I’ll think about it, just not sure. The people are really friendly, but of course the first thing they ask is: are you new to the neighborhood? No, we don’t even LIVE IN the neighborhood. Do they not want the church to grow? Can’t be all secluded and only doing stuff for the west side. Ken’s all worried that I’m going to get back in the middle of working at Emmaus stuff again. Guess we’ll see.

Work is going good. We’re growing. I am eligible to sit for the registry, but it is expensive and it never fails, every time the deadline comes up, something else is due also. Hopefully I can take it in November. I can’t believe I’ve been there almost a year already. The advantage, I have seniority, and as they keep hiring more people, I stay at the top :) The neighbor is moving out, so our Springs lab is expanding. We are opening more beds and adding some showers. As it is, we are up to 7 nights a week. In April we went to 6 nights a week when I offered to start working Sunday nights and just about a week ago we opened Saturday nights when they hired a new tech to work Saturday nights. I’m excited. I love it when we grow.

Hopefully I will do better at updating now. I think I have an app on my iPod Touch to update this now as well. I haven’t even been going to my reunion group, so I feel like I haven’t been keeping in touch with anyone. All I seem to do is work and sleep and run the dd around. Work schedule is supposed to calm down as well. Then maybe I can have a real life ;)

Ken’s job is going well. They just released a new update on their software that are driving people crazy. Apparently people don’t realize that email has a DELETE button and people are freaking out because they are actually getting email. This is stressing him out and so then he is coming home and taking it out on us. Or… he just stays at work until midnight working on stuff. Not a fun mix. Either he’s upset or not home. Hopefully they will get this all worked out soon. It’s a great feature if people could figure it out!!

Going to be having a Pampered Chef party in a couple of weeks. New catalog starts Sept 1. If you want to see it, hollar or you can visit Jen’s website. I quit selling over a year ago, but my neighbor right across the street started, so I still get my fix :) Supposed to have a Gold Canyon Party as well, and still owe a PartyLite party from the spring that I had to cancel. It’s fall. Time to start Christmas shopping, right?

Put a bunch of pictures up from our trip to Alaska on Facebook. I need to renew my flickr account so I can get them up on there as well…. but in the mean time, if you are a friend on FB, you can see them there ;)

My SIL, Via lost her Mom last week to Cancer. Don’t think I am going to make it down for the funeral this weekend. My MIL is having surgery soon as she has CA as well. At least her’s should be well contained following a hysterectomy. Ken is still kind of freaking though. Basically, if you have to get CA, I think that is the kind to get. Remove the parts and it’s gone ;)

I’ve been doing good. My back acted up last week, but since it hasn’t happened since LAST August, I guess I can’t complain. Fibro is REALLY bad today. Praying it’s just the weather!! Need to find out if there is a way to do traction on my ankles. That really seems to help though… and I can physically see a difference in the blood flow to my toes when they actually pull on my ankles. Problem is, I can’t do it to myself.

I think that’s about it for today. Anyone know of someone who wants to buy a hard top and doors for jeep wrangler? Ken decided he wants to sell his hard top and buy a soft top. He thinks that if it is snapped on tight, it will have less leaks than the hard top that doesn’t fit well. Guess we’ll see. I just know we need to get something done so he’ll stop stealing my car when it rains ;) I got a new car this summer. Good thing is, he likes my car. He likes to drive it… and thus I get to drive the jeep. But just for the record HAIL HURTS!! I had to run and pick up K after school one day in the jeep and it started hailing. No doors… I got nailed!!!

Oh, and if you aren’t a friend on FB… my user name is: You guessed it: Crayonsetc ;)

Filed under : Faith, Family, Health, Pampered Chef, The DD, Travel/cars, Work
By Les
On August 24, 2009
At 11:01 pm
Comments : 0
 
 

School Is Going To Be The Death Of Me

I was really hoping after last year, school would get better. Ok, it would help if I had her at a quiet room, at a table and I could could go about my business. The problem, she doesn’t need me sitting right there, cuz she can DO the work, but you can’t leave her alone because she won’t do a thing.

Right now our days consist of fighting in the morning (to get dressed). She will be awake, and then just sit there. Then even if she is ready, she has to put on her shoes. I figured out why we always wore Crocs, No tying! She takes almost 5 minutes per shoe! They don’t make Good Quality Shoes (that will make the podiatrist happy) that valcro.

Then she gets to school, doesn’t get everything done, not because she can’t do it, but because she is slow. So they send home whatever she can’t get done, meaning MORE homework. So then we spend the after-school FIGHTING, doing homework until dinner, then finishing what she hasn’t gotten done.

If we let her work in the kitchen without supervision, she turns on the TV. If she has to do work on the computer, she goes to the Warrior sites instead of the homework. She is 10, I shouldn’t have to watch EVERY SINGLE thing she does. No consequence seems to phase her. The first thing I actually found that comes close to working was me taking away her Warrior books. I had to explain to her teacher that she was saying she didn’t have a book to read, and I pointed out that she has library books and can read them. I told her teacher I only took away the 1 series to try and teach her about appropriate times for reading. An hour in the bathroom instead of homework, or at 10:30 at night instead of sleeping on a school night. Reading is good, but, HELLO!

She then doesn’t get to sleep on time, doesn’t get enough sleep, doesn’t want to get up, or wakes up late. Is crabby at school and doesn’t want to do her work, which they send home, which means more homework, which makes a vicious cycle!

Tuesday her teacher said to me “she isn’t turning her work in” and how “behind she is getting”, how “it is becoming a habit”, etc… I won’t even start on my frustration of Monday night, I had my reunion group… nothing new… every Monday for at least 3 years now! Tuesday, Ken has bible study, so it was just us. She was almost done with what is in her planner, so I left her alone, and I was not listening to MY doctor and was weed-eating the yard (the teen we hired did not come back as promised, and did a horrible job… Will not hire him again btw, didn’t want to this time, but K wouldn’t let me mow and I couldn’t even guilt the other person in the house to do it) Anyway, using the weed eater was not a problem, til I went to our south side of the front yard… to big of a hill and it hurt my toe! (trying to hold myself up… I had Ken’s croc on the surgery foot and my croc on the other, so toes were covered)

Anyway, my point, cuz I was way off track, she told me she was done except printing her grades and I had to approve the website (I Love my Mac), so I said she could play, and we would print the page after dinner. When I got in the house, I was looking in her folder and found MORE homework that she ‘forgot’ about. So, we spent the rest of the evening doing that. At 9:30, I reminded her she had’t had dinner yet. I had eaten while she was ‘playing’. Our neighbor’s gma was taking them chasing the moon since it was full. So, not only did she not get a shower, I was making her a sandwich at almost 10. Ken had gotten home and was hiding in the basement. Wednesday we ALL over slept, and she still moves just as slow! She gets very upset when her friends don’t wait, but if she doesn’t walk right out the door when they get here, they leave without her! (even when it is early!!) Then I get frustrated, cuz she gets upset.

Then in the afternoon I get a call from the school cuz she is ‘off’ at school and having issues, (she wrote on a paper that one of the para’s was Stupid… kids!!) cuz she is exhausted, which leads to more homework, and the cycle continues. Not to mention the fact she now has NO time for chores, the cats scream at me all day because their litter box is FILTHY, and it is self cleaning, but it is so full, it can’t do anything…. I gave up on her putting away dishes, because the sink was so full of dirty dishes, I couldn’t stand it anymore… and I did it… etc….

On Wednesday night K has bible study. She got her homework done, so she got to go, but was finishing the last 2 math questions and finishing coloring her map on the way up… it is a 15 minute drive to the Ministry Center, and I had to take her, even though I am still not allowed to drive! Then I asked Ken to get her dinner on his way to get her, so she could eat on the way home and get in the shower, cuz today is picture day. And he waits til after so she doesn’t have cold food. Since when does she care? So, at 10:30, she is heading to bed, cuz since when can K take a 5 minute shower… and Thursday is choir, Before school, which means getting up early. And then he wonders why I am putting in a call to my therapist before he leaves to go get her to see if they have an appointment for today!!!!

I am going to spend the night in Denver tonight, so I don’t have to get up so early tomorrow. I just need to get away!!! Women of Faith is this weekend. I so NEED this!

Filed under : Life, Mental, The DD, phone entry, school
By Les
On September 18, 2008
At 8:59 am
Comments : 0
 
 

The Mission

Today, K’s class got to finally do their mission. My dd’s teacher is involved in the teacher in space program. So, in conjunction with the Challenger Learning center (at a local middle school) they were in the year 2080 and saving a lost ship. They were wired to the learning center, pretending they were earth, and then proceeded to save some astronauts. K was on the transmission team. They finally put the article up on the news website.

Hopefully they will be in the paper tomorrow too :) K has been waiting so long for this!!! They have been planning all year!!

Filed under : Science, The DD, school
By Les
On April 30, 2008
At 8:14 pm
Comments :1
 
 

God Filled Weekend

So I spent the whole weekend doing nothing but Emmaus stuff… or so it felt. Saturday, which was absolutely beautiful… again, I was inside all day at a team meeting for the June Walk. We even got out early, and I swear within 10 minutes of getting home, the temp dropped by about 20 degrees and it started snowing before dark. It is just wrong!! Oh, but I am really excited… one of the ladies that was in my now defunct reunion group is working the June walk. I haven’t seen her or spent any time with her since… since My walk I think, which was 3 years ago this month. That is a long time. She had gone to school… and is now done and working and now working a walk. I am so excited… and the other God thing… she is one of my prayer partners… and the people who did the prayer partners had no clue we use to be in a RG together!!! God is so good!!

Sunday I got to go to bridal shower for my friend’s dd, who was in the youth group when I was a youth sponsor. Yes, I am past the feeling old part… that happened when Jeani had her baby almost 3 years ago (I was her confirmation mentor when she was in 8th grade :)) Then I left and went to the min x min for the walk next week. Yes, they have everything on a weekend broken down that close… making sure that stuff is where it needs to be when. it is an amazing thing.

And then last night I have my reunion group. I have missed these ladies… it has been too many weeks since we all actually made it!! We worked on stuff for the walk. I am so excited. Did I mention I am sponsoring someone??? My first time sponsoring someone I don’t really know. God is stretching me this time, that is for sure… It is going to be good!!

Today I went to a funeral for a wonderful woman who lead such a Christ centered life. It is so great to go to a memorial and have it be such a celebration. I hope my funeral is that nice when the time comes and that everyone says how I lived my life to Honor the Lord!!

I had applied to join a blog group over the weekend… and had to giggle when my reason for not being accepted was that I hadn’t had my blog going for over a month. I have had a blog so long… it just might have changed locations… but it has been a part of my life for so long!!! And if you google Crayons… I show up in the first 2 pages… or at least I use too… haven’t done it in a bit… but if you google Crayonsetc… it is all me… or links to me :) I emailed them back and said that must have been a problem from when I updated my wordpress and will fix it. I got it fixed now… so there are archives and a calendar and comments in the side bar… but when I tried to move them to different locations in the side bar, it just didn’t work…. so I put it back to where it started and will have to recruit some help from some friends :) I know html, but not too good with the php stuff!!!

Almost half way done until Belinda gets back from England. I am enjoying having F every day, but I have forgotten how tiring it can be having a 2 year old running around the house. I think having her here has cured the baby cravings… K is 10 years old now, do I really want to start over? Yes… and it is easier when you start from not crawling and work your way up!! Oh my goodness…. it is april. Oh, so not going there!!!

Oh, and I got a call about VBS tonight. I had told them that I would do whatever they need me to do… I had signed up to work with preschool. Today she asked if I would coordinate the preschool crafts. (figuring we need to do different stuff than the older kids). See, another God thing… cuz VBS is the same week as the June walk. Doing this… as long as i have it all coordinated, it won’t matter if I miss Friday! (and being conference room, I don’t have to be at the walk until 4 on Thursday, so I can still do Thursday morning stuff… this is June though, not next week!!) Life just seems to be getting crazy… or just busy. And this is without a job. I can’t imagine doing all this with a job… but I promised dh!!

So, go hug your loved ones, tell them how much you love them… and enjoy your day.

Filed under : Faith, Real Life, Reunion Group, The DD, Work
By Les
On April 15, 2008
At 11:53 pm
Comments : 0
 
 

2 Hour Delay

and the weirdest part is that it is NOT due to weather. People who don’t turn on TV or radio in the morning will have no clue and no reason to even look….

It is due to vandalism! They let all the air out of the bus tires… all 120 of them. At least they didn’t slash them… so it really only causes a loss of time for the people who have to go around and fill All those tires, but still. I was sitting her this morning trying to figure out how someone could cause that much damage because it is not in a secluded part of town anymore, like it use to be… it is next door to a Wal-Mart. That was before I heard what they actually had done. Now, if they actually pulled all the stems, that is a whole nother story… it would have been faster, but man, it will be a pain to fix and fill!!!

I called my boss at 6:45 this morning, figuring they would still have work, but to let her know… again, cuz who would have looked. I told her that I figured she would get a WHOLE LOT of phone calls!! I got 7 emails from the school district today. I think they wanted to make sure we knew!!! Ken had heard it on the radio… the first thing I did was pause and double check the date… I knew it wasn’t the 1st anymore!!

What a crazy day!!!

Filed under : school
By Les
On April 7, 2008
At 8:44 am
Comments : 0
 
 

Everything Is All My Fault!

At least that is what I keep being told and I am tired of it! Did you know that I am the only person who lives in this house??? Yes, I am responsible to cook the food, serve the food and clean up the dishes afterwords. If the dishwasher has not been emptied, then everything gets stacked on the counter, because Mom did not do what she was supposed to do. Granted, emptying the clean dishwasher is supposed to be the dd’s 1 chore she actually has!@! 

Did you know that I am the only person in this house that takes out the trash. I get in trouble because I hang the plastic bags from the grocery store on the counter, but if someone would pay attention, the only time that actually happens is when the BIG trash can is Full. Yes, that is the 1 chore that the dh has in this house…. Tuesday was trash day, and it is still sitting there full since SUNDAY, because I REFUSE to take it out. The dd and dh on the other hand will keep putting trash on it until it is so full that everything is falling on the floor. Yet, I am not supposed to get upset that there is CRAP on the floor!

But my all time favorite comment of the week was when the dd informed me that she did not have any clean underware, because I did not do the laundry. Yes, once again, everything is my responsibility. It doesn’t matter that I got so sick of her never taking care of her clean clothes, that I put all of her clothes in a laundry basket and didn’t give them to her and she never even noticed. I have been told that apparently her picking up her dirty clothes off the floor is an issue with her asperger’s and that I am going to have to just learn to deal with it. I am sorry, it has to do with the fact that she is 10 years old and She IS going to learn to pick up her clothes, because, you know what? If you put your clothes in the dirty clothes HAMPER when you take them off, than having to pick them up off the floor NEVER has to happen, right?

I am sick of hitting stuff with my feet because there is crap all over the floor. I NEVER wear shoes, especially IN the house… and I am done. Yes, I am in a REALLY BAD mood this afternoon. We don’t have the money to fill my RX this week and I am currently going through the withdrawl of my anti-depressants. It is not a bad thing, because I would MUCH rather have one that is NOT $50 month anyway (and that is just the CO-PAY) We didn’t even have money to pick up my daytime dose of my ‘wake up’ meds… so I was taking a nap this afternoon and NOTHING got done. I am not at karate because I did not get my shirt in the drier. Yes, that one is my own fault and I am suffering the consequences. But this being blamed for every flipping thing that happens in this house is enough.

I am sick of EVERYTHING being MY fault. I am NOT the only one who lives here and I am NOT going to be the one taking the blame.

I have asked my husband more than once to help me get the garage cleaned out before we got the 2nd car this week so that we could fit 2 cars in the garage.  He is the one who doesn’t want me to just get RID of all the computer PARTS that is NEVER used and just sitting out there. Fine, but you have to help me do it. It is supposed to be absolutely beautiful this weekend, and where am I? At an all day meeting all day tomorrow. Do you think 1 single thing will be done? Yah, I think I would be willing to put money on that one!

This is opening weekend for the Rockies home games, and can we afford to go to a single game this weekend? It isn’t like we don’t have money, it comes down to how things are spent…. and of course, it is, again, all my fault. Did you know that I am not the only one who goes without in this house? That is what I was told this week. Did you know that I have yet to see the husband not get something that he wants, except going to the home opener this afternoon. If he doesn’t buy something, I almost always try and find a way for him to get it. Does he ever notice at all that I NEVER tell him NO? I know how hard he works to bring home the money for this house. I go without a bra that fits before I let him even be short on iTune cards… but yet, it is all him that gives everything up. (I won’t even start on clothes) Although, I have actually had to buy myself new clothes, not because I feel like just going out and buying them, but because my clothes are actually FALLING OFF MY BODY! What have I been buying? Clearance. I have bought 2 skirts… for $1.50 each. last weekend I bought a couple of shorts, they were $3 each. The one pair that was $1 is a junior, and after wearing them for a bit, I realized they are not the right size, because I either have plumber issues or they just fall OFF my body. By the way, it is good for the self esteem, but not a lot of fun when you all of a sudden have pants/shorts around your knees. Juniors are just cut so weird… but I kept thinking, Oh, they are only $1, I can make them work.

OH, AND HAVING TO MANUALLY PUT IN ALL OF THE PARAGRAPH BREAKS ON THIS STUPID PROGRAM IS DRIVING ME TO THE POINT I AM EITHER GOING TO CHANGE PROGRAMS OR JUST STOP BLOGGING ALL TOGETHER, I AM SICK OF THIS!!!

Filed under : Clean/org, House, The DD, The DH
By Les
On April 4, 2008
At 6:44 pm
Comments :1
 
 

Better Me

Ok, I decided that I will post all my medical stuff back over at Better Me… even if it is about the dd. I just put a bunch of links up over there. I am doing much better… as I am finding this all almost a relief instead of a tragedy, especially since I have realized that I think my mom and I have finally found the diagnosis that we knew was out there. We have said for a number of years now that one day, we would find something that would tie all of our problems into 1 nice little package… and I think we found it. It is something our whole family has lived with (they just never knew what it was back then) and they all lived to long happy lives. Ken is arguing with me about this and just says lets wait and see what they say. I understand all of that, I truly do, but at the same time, when it is right there in front of your face in black and white, it is sometimes hard to see blue!

Filed under : Alphabet Soup, Health
By Les
On March 31, 2008
At 1:58 pm
Comments : 0
 
 

You Would Think I Would Be Surprised….

but I am not! God is truly amazing!!!

I got an email from one of my friends today on one of my email lists. Terry was saying how she and 2 of her children were diagnosed with Ehlers-Danlos in October. First of all, I had never heard of it before, let alone met someone who had it, and 2nd, I have had to explain it to all but 1 of the doctors/therapists we have seen for K (except of course her Ortho doc who diagnosed it), then for me to not only find out that someone on one of my email lists has it, but to have it be someone I have actually met IRL, is just amazing. She called me this afternoon and I swear we were talking for like 2 hours. The more we talk, the more we have in common. Now it makes me wonder more and more about it (yes, to the point where I am thinking that I am the one who gave it to K). But the good part is, that I have relaxed and realized that K can and most likely will grow up and have a normal life.

This is where Terry and I started talking and we have so many things in common… Fibromyalgia, thyroid, PCOS, narcolepsy (ok, it is actually idopathic Hypersomnia, but how many people actually have a clue what that is? I have to explain narcolepsy and a lot of people know what that is!). Anyway, it has made me realize that maybe it is me. she told me when she went back to her doctor after her diagnosis, that the doctor actually stopped writing and looked up and said that it so explains so many things.

The interesting facts I am figuring out. Ehlers-Danlos is one of those inherited disorders that only 1 parent has to have the gene to pass on. They also call it hypermobility, which is where I come in. On the list of conditions that people with hypermobility have. GERD - Me, IBS - Me, Planter fasciitis - Me, bursitis - Me, anxiety or depression - Me, Knee pain - Me (and K), back pain- Me, hernia - me (granted mine is hiatal, but still), prolapsed discs -Me, Bruising easily - Me, Joints that make clicking noises - Me, Headaches - Me, TMJ - Me (and not K), Increased nerve compression - Me. (ie: carpal tunnel). Oh, and I won’t even start on my scaring issues. I scar so bad. The reason I won’t even consider lasix surgery because I am worried about scaring on my eye causing me to lose it!!Anyway, the more I am reading, the more I am seeing the family stuff here… and the more I realize we need to keep an eye on the nieces and nephews on my side of the family. At least get them an echo, just to make sure… especially since my sister has the heart issues!! (and pretty much whatever I have, so does my mom!)

Ken has actually threatened to take away the computer today because I just keep going from website to website… So I am going to save this and be done. I need to go vegg anyway… my temp is 99.6, which I know for most people is nothing, but I don’t run temps… when I had meningitis I only ran 101 at most… and that is one you run high temps. Thank for the continued prayers!!! Keep them coming, although I am much more calm today!! (just sick) My right cheek feels like I have been punched… it hurts so bad. I see the new Dr on Tuesday, so I am going to continue taking my OTC meds and try and make it til then… and in the mean time… of to start the laundry!

Filed under : Alphabet Soup, Health, The DD
By Les
On March 29, 2008
At 4:30 pm
Comments : 2
 
 

I had a total melt down

This morning we had our parent conference for all of K’s evals. Well, I think that they thought everything would be ok, because they covered the basics. Problem is, Mom is medical and Mom knows a lot more than the normal person. Since K was 18 months, she has had PT, because she has HypOtonia (not to be mistaken with hypERtonia)… she is TOO flexible. Well the parts we are finding out is that she has ligament Laxity… which means that she has so much give in her ligaments that they basically have trouble holding things together. 

Every since they were talking to us this morning I keep picturing those toys that are made with ropes, when you push the button they completely collapse… Basically that is what they are telling us. Between the lack of ligament support and the fact that she has lack of tone in her muscles, she is lucky she is walking. Her knees are bowing, her elbows are bowing, and she doesn’t have enough movement in her hips because basically that is the only stable point in her body, but she doesn’t have the proper movement in her hips, causing her to walk weird.

Her range of motion is below normal in all her joints. Well, when you start reading about the 2 different problems that we know she has, it is expected to start having joint problems, thus the reason her knee has been bothering her since she jammed it last summer at a Sky Sox game (it was the last game of the season). She however didn’t start complaining to me about it again until January, thus starting all of this process.

The part I did hear is that it is only going to get worse as she gets older. It can effect her back (which explains the times she has complained about her back hurting and I blew it off thinking she was using a ‘Mom excuse’ to get out of doing a chore.

The light at the end of this was Speech Therapy. Yes, she has some processing stuff, but that goes with Asperger’s. She can repeat back a sentence, she can make up sentences and stories when you give her a few words. Where she has problems is when she is given like a 3 step command where the 3 things are not related… example, Get out your math book, open to page 85 and do problems 1-10. Yes, they might all be about Math, but the steps are not related, and thus she probable will lose something in the process, which we already knew. Basically, she is NOT in the 1st percentile for Auditory Processing Disorder… more like 85th percentile. They did recommend ST, but then we can probably get the school to help out with this.

The biggest thing is, we didn’t get to the OT eval (we ran out of time) and so we will be going back for that next week. I did have her look though and basically, the reason we have trouble with her handwriting is she doesn’t have the muscle tone to hold her arm to where she can write. Her fine motor skills came back below age level… at about a 6 year old. thus the reason they have recommended OT, but again, we will be talking more in detail next week.

I held it together well until we got into the car and I started melting down when I talked to my Mom. I am so frustrated because of the fact she was in therapy at 18 months for the Hypotonia… and basically, they should have NEVER discharged her back then. It isn’t like I have not had her into the doctor over all these years. Why are we just now finding all of this out at the age of 10? Why did the OT that we saw last year not see any of this? Yah, these are the questions that Mom is asking herself and beating herself up about now.

I need to go to the store… shopping is therapy for me. The interesting part is, just last night I had sent out applications looking for a Respiratory Therapy job so we could get a 2nd car… and more and more it looks like I need the job so we can get a second insurance to help cover co-pays and cover more therapy!!! (since we only get 20 visits TOTAL for all 3 therapies together. Yes, that will be another call I make today to try and see if we can get more with medical necessity. 20 per therapy would be much better!!!) Other problem is though, if I get a full time job, then I am not home to take her to all these therapies!!

Just keep us in your prayers, please. I know God has a plan, now to just figure out what it is.

Filed under : Alphabet Soup, The DD
By Les
On March 28, 2008
At 12:32 pm
Comments : 2
 
 

Life gets in the way

I have planned to write so many times this week and it just never happened. Life has been nuts. I got calls from the school twice this week… and it was to the point that my dh, the person who has his first degree in education, who has been adamant every time I talk about my friends who home school, that we would never do that… he said to me… do you think you could be organized enough to home school her? I almost fell over. I actually did go to the school and talked to the principle about moving her class… it has gotten that crazy. There are a few things with an Asperger’ child that you have to learn when trying to teach them. For one, I have learned that with K, even if you are not standing over the top of her, you CAN NOT have her in a different room when she is doing home work. With that being said, you don’t send her into the hallway when you expect her to get work done… or leave her in the class room when you are outside on duty, because 1. she is 10… and 2, she has ADD, and WILL get off task. Monday she started playing a game on the computer instead of doing her work. Gee, big shock… even for a kid without Asperger’s! And then on Wednesday, I get called that she is at the principle for calling kids names. Ok, I get there and expect butthead or stupid or something like that. No, she got sent to the principle… are you ready for this one… because she was calling every child that walked past her in the hallway MEGAN. HELLO??? Yes, that is right. And if he had taken 2 seconds to talk to her… the reason she was doing it is because a couple of the kids were talking about what it would be like if everyone had the name Bob… and one of those kids started calling everyone BOB… so she decided to start calling everyone Megan. I am sorry, that might be annoying, but that is NOT a reason to send a child to the principle.

And I spent the rest of the week trying to finish up cookie paperwork… with the majority of the troop profits still sitting in my garage. Anyone need cookies??? I REALLY need to get rid of them… not to mention the ones I had to pay for because I can’t get them delivered!! 

I need to go to bed. Night!! Oh, and guess what… my  CT came back saying I have a sinus infection. GEE, REALLY??? Isn’t that what I told the doctor when I went in there??? Might it have something to do with the fact that they cultured my nose and it came up MRSA, yet they didn’t treat it, even though I STILL had a sinus infection. When she asked me how long I have had it, I told her… since JANUARY 20!!! (I don’t think she believed me!!)

Filed under : Alphabet Soup, Health, Organizations, The DD, school
By Les
On March 17, 2008
At 1:02 am
Comments : 2